All posts by Mad Price Ball

About Mad Price Ball

Executive Director of Open Humans Foundation and Shuttleworth Foundation Fellow.

Five new data sources!

We’ve added five new data sources for Open Humans members. We know you have some great stuff to share with science. Get your data in so researchers know it’s there!

Easy links below: you can jump right into adding each source…

  • Connect Fitbit
    Health and fitness devices, including activity trackers that record steps, heartrate, and sleep, as well as a scale.
  • Add Illumina Understand Your Genome
    Whole genome sequencing, generated as part of symposium teaching attendees about their genome data.
  • Connect Moves
    An always-on location logging app for iPhone or Android. It counts steps and classifies activities as walking, cycling, running, and transit.
  • Add uBiome
    Sampling kits for individuals to test gut, mouth, and other locations, performing microbiome sequencing & profiling.
  • Connect Withings
    Health & fitness devices, including a scale and a blood pressure monitor, as well as the Health Mate smartphone app.

These sources are all “in development”. We won’t be able to generate files right away, but we will soon! Add the source and we’ll build our data processing based on what we see.

Sharing is always optional. You choose when to share & who to share with. Data is private by default!


Other data sources…

In case you missed them, here’s all our other data sources (some studies, some commercial). Do any look familiar? Follow the link to add it to your account!

You can also add data files from anywhere using our Data Selfie feature!

GET Labs & GET Conference

As a reminder, Open Humans members are invited to GET Labs & GET Conference in Boston this April 25th and 26th! It’s a unique participatory science event that’s been running since 2010. Registration is still open – read more about it on our previous blog post.

GET Conference & GET Labs

We would like to invite Open Humans members to attend the 2016 GET Conference and GET Labs!

On April 25th and 26th, leading thinkers, scientists, and participatory researchers will gather in Boston at Harvard Medical School for two days of interactive science and amazing talks.

  • Tickets for GET Labs exclusively available to ALL Open Humans members (and ONLY Open Humans members) for a nominal fee of $16! Becoming a member just takes a minute.
  • Tickets for the GET Conference are typically $299, but attendance is FREE for qualifying Open Humans members!

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GET Labs on April 25th

This is an exclusive event for members of the Open Humans community!

What is “GET Labs”? This event is all about advancing science through direct participation. We bring together participants and researchers for a day of interactive labs. If you’ve never been, it’s a unique experience! Our community has helped advance all kinds of research, everything from viral profiling, perfect pitch, ancestry, fitness sensors, user interface design for genome reports, and – probably most popular last year – face mites! (Yep, turns out we all have Demodex mites.)

Fifteen research studies are already planning to attend, and the list is sure to grow. As in years past, the Harvard PGP, GoViral, and American Gut team will attend – and they’re planning to share free microbiome kits with qualifying members!

It’s also a chance to meet other Open Humans members! GET Labs invitations are open to ALL Open Humans members – and ONLY Open Humans members! – for a nominal fee of $16.

Click here to register for GET Labs!

The day will close with our first ever GETy Awards ceremony, honoring excellence in participant-centered research, followed by a reception.

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GET Conference on April 26th

We’ve got amazing talks & discussions lined-up this year! Come learn from leading experts about:

  • Integrated Omics Profiles
  • Microbiomes, Health, and Built Environment
  • AI & Medicine
  • Networked Biology

Part of what makes the GET Conference amazing is how the audience truly bridges researchers and participants. Each year, we reserve around half of the seats for participants from our community, as a thank you for engaging with us and collaborating in the creation of culture of participatory research. For qualified members, registration is free: all we ask is for a donation in the amount you can afford. For everyone else, tickets are $299.

To learn more, click the button below and look at the “special opportunity for Open Humans” on the registration page for how to qualify for your FREE Ticket.

Click here to register for the GET Conference!

As you can see, this year’s events are not to be missed. We hope you can make it! Full agenda here.

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Now Hiring: Back-end Web Developer

Help spread the word! We’re seeking a Senior Software Engineer at PersonalGenomes.org to work on the Open Humans Network, a project that aims to help people aggregate and share their health and trait data to advance scientific, educational and humanitarian causes.

Our model for this initiative is the work we’ve done on the Harvard Personal Genome Project (PGP), which has over 3,000 volunteers publicly sharing extensive biological and trait data, including hundreds of whole genomes, exomes, and genotyping data sets, over 1,000 health records, microbiome datasets from various bodily habitats, device data, brain imaging, etc. This combination of a highly informed and engaged community of volunteers and their contributions of extremely rich biological and health data, along with a network of collaboration-minded researchers, is an incredibly powerful scientific and educational resource that is unrivaled elsewhere. We will build on this momentum with this exciting new initiative that will transform participatory research and advance human health. Check out our recent blog post to see news coverage, videos, and learn more about Open Humans.

Our current hiring position is focusing on someone with back-end web development skills, as we have plans to work with a design firm for initial front-end work. Because we plan to develop open source software used by researchers, we believe Python (which many scientists use) is generally preferred.

We’re looking for someone who…

  • Is interested in building and managing a full-stack website. As the Senior Software Engineer, your expertise will be an important factor in decisions about what kind of technology is used and how it’s deployed.
  • Has used multiple programming languages to build production systems (e.g. Python, JavaScript, Ruby).
  • Is experienced with back-end web development (e.g. Rails or Django).
  • Is comfortable managing Unix servers, cloud-based services and has opinions about how to store and disseminate large datasets (currently around 50TB total, although we would start with managing <10GB).
  • Works well in a small team of developers and scientists.
  • Loves science, participatory research, and free/open source ideals.
  • Believes in our mission!

About PersonalGenomes.org
PersonalGenomes.org is a 501(c)(3) nonprofit organization working to generate, aggregate and interpret human biological and trait data on an unprecedented scale. PersonalGenomes.org’s mission is to make a wide spectrum of data about humans accessible to increase biological literacy and improve human health. Its efforts are informed by values encouraging greater transparency and collaboration between researchers and participants. The organization supports the Personal Genome Project (PGP) global network. The first PGP research study was founded at Harvard Medical School in 2005, and PGP sites now exist at leading institutions in four countries. We also produce the annual Genomes, Environments and Traits (GET) Conference.

About Open Humans
We have years of practical experience, thousands of participants, and diverse data sets accrued. What we need now is an experienced developer to help us build a site for participants and researchers to manage and publicly share this data. Think of this as a nonprofit startup project!

Location
We strongly prefer for the software engineer to be based in Boston, Massachusetts. We can be flexible on geography with the right person, and might also be interested in engineers based in New York City. We collaborate with people all over the globe.

Your experience
In addition to your resume or CV, please feel free to share any open source projects, side projects, and development experiences you are proud of.

Compensation
We offer a competitive salary, commensurate with experience.

Contact
Jason Bobe, jason@personalgenomes.org
Madeleine Price Ball, madeleine@personalgenomes.org

What is Open Humans?

What is Open Humans? Open Humans is about science, sharing, and community. To kick off our blog, we’d like to open with some links to various media about Open Humans from the past couple months.

Personal Genome Project Participants at GET Labs. Aurelien Dailly for PersonalGenomes.org, CC-BY.

New platforms aim to obliterate silos of participatory science

(Article) GET Labs and Open Humans are discussed in this article by Elie Dogen at Nature Medicine News, including some quotes from Jason and the context of GET Labs. Also some quotes from researchers we plan to work with at American Gut and Flu Near You (Daniel McDonald and Rumi Chunara).

By opensource.com, CC BY-SA license.

Some patients are eager to share their personal data

(Article) An interview of Madeleine by Shauna Gordon-McKeon, posted at opensource.com. Madeleine gives some background on motivation for the project, reflecting on lessons learned by the Personal Genome Project at Harvard.

2014bitsbiology_screenshotOpen Data, Open Humans

(Video, 9 min) Madeleine’s talk about Open Humans at the Bits ↔ Biology meeting at MIT. Human research generates identifiable data, creating a tension between privacy and data sharing. Participant-mediated data sharing has the potential to unlock that data and transform how we research ourselves.

From Volunteers, a DNA Database

(Article) In April, the New York Times Science Section featured GET Labs, the Personal Genome Project, and other Open Humans collaborators. Quotes from Jason, Open Humans adviser Abigail Wark, and participant Beau Gunderson.

screenshot_QSPHS-2014_Jason-talkParticipant Centered Research Design

(Video, 10 min) Jason discusses the concept of “participant-centeredness” at the Quantified Self Public Health Symposium at the Qualcomm Institute at UCSD.