Monthly Archives: June 2014

Now Hiring: Back-end Web Developer

Help spread the word! We’re seeking a Senior Software Engineer at PersonalGenomes.org to work on the Open Humans Network, a project that aims to help people aggregate and share their health and trait data to advance scientific, educational and humanitarian causes.

Our model for this initiative is the work we’ve done on the Harvard Personal Genome Project (PGP), which has over 3,000 volunteers publicly sharing extensive biological and trait data, including hundreds of whole genomes, exomes, and genotyping data sets, over 1,000 health records, microbiome datasets from various bodily habitats, device data, brain imaging, etc. This combination of a highly informed and engaged community of volunteers and their contributions of extremely rich biological and health data, along with a network of collaboration-minded researchers, is an incredibly powerful scientific and educational resource that is unrivaled elsewhere. We will build on this momentum with this exciting new initiative that will transform participatory research and advance human health. Check out our recent blog post to see news coverage, videos, and learn more about Open Humans.

Our current hiring position is focusing on someone with back-end web development skills, as we have plans to work with a design firm for initial front-end work. Because we plan to develop open source software used by researchers, we believe Python (which many scientists use) is generally preferred.

We’re looking for someone who…

  • Is interested in building and managing a full-stack website. As the Senior Software Engineer, your expertise will be an important factor in decisions about what kind of technology is used and how it’s deployed.
  • Has used multiple programming languages to build production systems (e.g. Python, JavaScript, Ruby).
  • Is experienced with back-end web development (e.g. Rails or Django).
  • Is comfortable managing Unix servers, cloud-based services and has opinions about how to store and disseminate large datasets (currently around 50TB total, although we would start with managing <10GB).
  • Works well in a small team of developers and scientists.
  • Loves science, participatory research, and free/open source ideals.
  • Believes in our mission!

About PersonalGenomes.org
PersonalGenomes.org is a 501(c)(3) nonprofit organization working to generate, aggregate and interpret human biological and trait data on an unprecedented scale. PersonalGenomes.org’s mission is to make a wide spectrum of data about humans accessible to increase biological literacy and improve human health. Its efforts are informed by values encouraging greater transparency and collaboration between researchers and participants. The organization supports the Personal Genome Project (PGP) global network. The first PGP research study was founded at Harvard Medical School in 2005, and PGP sites now exist at leading institutions in four countries. We also produce the annual Genomes, Environments and Traits (GET) Conference.

About Open Humans
We have years of practical experience, thousands of participants, and diverse data sets accrued. What we need now is an experienced developer to help us build a site for participants and researchers to manage and publicly share this data. Think of this as a nonprofit startup project!

Location
We strongly prefer for the software engineer to be based in Boston, Massachusetts. We can be flexible on geography with the right person, and might also be interested in engineers based in New York City. We collaborate with people all over the globe.

Your experience
In addition to your resume or CV, please feel free to share any open source projects, side projects, and development experiences you are proud of.

Compensation
We offer a competitive salary, commensurate with experience.

Contact
Jason Bobe, jason@personalgenomes.org
Madeleine Price Ball, madeleine@personalgenomes.org

What is Open Humans?

What is Open Humans? Open Humans is about science, sharing, and community. To kick off our blog, we’d like to open with some links to various media about Open Humans from the past couple months.

Personal Genome Project Participants at GET Labs. Aurelien Dailly for PersonalGenomes.org, CC-BY.

New platforms aim to obliterate silos of participatory science

(Article) GET Labs and Open Humans are discussed in this article by Elie Dogen at Nature Medicine News, including some quotes from Jason and the context of GET Labs. Also some quotes from researchers we plan to work with at American Gut and Flu Near You (Daniel McDonald and Rumi Chunara).

By opensource.com, CC BY-SA license.

Some patients are eager to share their personal data

(Article) An interview of Madeleine by Shauna Gordon-McKeon, posted at opensource.com. Madeleine gives some background on motivation for the project, reflecting on lessons learned by the Personal Genome Project at Harvard.

2014bitsbiology_screenshotOpen Data, Open Humans

(Video, 9 min) Madeleine’s talk about Open Humans at the Bits ↔ Biology meeting at MIT. Human research generates identifiable data, creating a tension between privacy and data sharing. Participant-mediated data sharing has the potential to unlock that data and transform how we research ourselves.

From Volunteers, a DNA Database

(Article) In April, the New York Times Science Section featured GET Labs, the Personal Genome Project, and other Open Humans collaborators. Quotes from Jason, Open Humans adviser Abigail Wark, and participant Beau Gunderson.

screenshot_QSPHS-2014_Jason-talkParticipant Centered Research Design

(Video, 10 min) Jason discusses the concept of “participant-centeredness” at the Quantified Self Public Health Symposium at the Qualcomm Institute at UCSD.