What is Open Humans?

What is Open Humans? Open Humans is about science, sharing, and community. To kick off our blog, we’d like to open with some links to various media about Open Humans from the past couple months.

Personal Genome Project Participants at GET Labs. Aurelien Dailly for PersonalGenomes.org, CC-BY.

New platforms aim to obliterate silos of participatory science

(Article) GET Labs and Open Humans are discussed in this article by Elie Dogen at Nature Medicine News, including some quotes from Jason and the context of GET Labs. Also some quotes from researchers we plan to work with at American Gut and Flu Near You (Daniel McDonald and Rumi Chunara).

By opensource.com, CC BY-SA license.

Some patients are eager to share their personal data

(Article) An interview of Madeleine by Shauna Gordon-McKeon, posted at opensource.com. Madeleine gives some background on motivation for the project, reflecting on lessons learned by the Personal Genome Project at Harvard.

2014bitsbiology_screenshotOpen Data, Open Humans

(Video, 9 min) Madeleine’s talk about Open Humans at the Bits ↔ Biology meeting at MIT. Human research generates identifiable data, creating a tension between privacy and data sharing. Participant-mediated data sharing has the potential to unlock that data and transform how we research ourselves.

From Volunteers, a DNA Database

(Article) In April, the New York Times Science Section featured GET Labs, the Personal Genome Project, and other Open Humans collaborators. Quotes from Jason, Open Humans adviser Abigail Wark, and participant Beau Gunderson.

screenshot_QSPHS-2014_Jason-talkParticipant Centered Research Design

(Video, 10 min) Jason discusses the concept of “participant-centeredness” at the Quantified Self Public Health Symposium at the Qualcomm Institute at UCSD.

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